7 p.m.

It’s MONDAY…the most challenging dialysis day of the week.  The nausea is RAGING…and it’s off the 1-10 scale this evening. 

Candidly, it’s really difficult to standby and watch this degree of suffering…especially when most people see her on non-dialysis days and wonder what the fuss is all about because she lives above her circumstances, keeps a smile on her face and successfully masks the ongoing waves of nausea.  Irene really does have, in many people’s view, an invisible disability, even though she has kidney dialysis 3 days a week. 

My virtual friend, Wayne Connell, addresses this chronic matter with his good work at http://www.invisibledisabilities.org/.

Hopefully Irene will continue with her routine…which is to recover by tomorrow morning, after tossing and turning through the night like a fish out of water because of the nausea and insomnia, another symptom of kidney failure. 

Our colossal and unrelenting enemy: Primary Amyloidosis…the cause of which Irene has been on this ruthless journey for 4 1/2 + years.

Thanks for caring,
Dave