Recuperating Well

Recuperating Well

Irene’s recuperating well from her successful kidney transplant.  She’s walking and getting stronger every day.  She’s doing all that’s required on her end: taking her temp and weighing twice a day; ingesting massive amount of meds throughout each day & endeavoring to convalesce.  She rode “shotgun” in the car yesterday for a number of errands; she patiently waited in the car as I hurriedly zig-zagged the grocery store aisles trying to figure out where everything was.

The anti-rejection MEDS have caused some degree of insomnia since departing UCSF.  The first night home she had ZERO hours of sleep; the second night 4+ and last night less than 2 hours.  She spoke with the UCSF transplant team today to discuss and hopefully mitigate the matter with some med tweaks.  She returns to UCSF Tuesday morning for her first of many weekly outpatient visits.

Irene is eternally grateful for the many expressions of support and concern that she’s receiving.  Without question, Faith, Family & Friends have been the defining support system for Irene…in addition to the world-class medical team @ UCSF.  For that, she declares a hearty “THANK YOU”….!

Her biggest concern is obvious: kidney rejection.  However, there are TWO MASSIVE, systemic vicissitudes in play for now; first, no further dialysis treatments are necessary which translates into NOT feeling like she’s been run over by a truck 3 days a week….and second, the 24/7 NAUSEA which she has battled for more than 6+ years is literally NON –EXISTENT.  These are…..………without question….of seismic proportion.

*** The 2 INCH binder that accompanies kidney transplant ***

The Primary Amyloidosis long term prognosis is unknown; we continue to hope that the disease has traveled as far as the East is from the West and will never, ever return.

Irene appreciates your ongoing thoughts and prayers……..her “signature smile” continues 24/7….where her inner JOY and buoyant courage have transcended her adverse & challenging circumstances….on this surreal journey of faith.

Thanks for caring,

Dave

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The Lord Will Raise Them Up

The Lord Will Raise Them Up

Is anyone among you in trouble? Let them pray. Is anyone happy? Let them sing songs of praise. Is anyone among you sick? Let them call the elders of the church to pray over them and anoint them with oil in the name of the Lord. And the prayer offered in faith will make the sick person well; the Lord will raise them up. If they have sinned, they will be forgiven. Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective.

—- James 5:13-16

Irene asked me to anoint her with oil and pray over her today.  We’ve done this several times over the last 6+ years; on occasion with close friends and spiritual leaders…sometimes just the two of us.  It’s always a contemplative and subdued moment.  We’re trusting and hopeful in the days ahead.

Thanks for caring,

Dave

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Another Day Of Recovery

It’s been another day of recovery for all the right reasons.  Irene rested comfortably even if it meant literally taking the kitchen broom out of her hands this morning…!  One very noteworthy mention is that Irene’s nausea, which has raged 24/7 for 6+ years has DIMINISHED to being almost non-existent.  This….is HUGE….

If you haven’t seen it, this short YouTube video created by our daughter JoAnna is worth viewing.  For those unfamiliar with Irene’s surreal journey with Primary Amyloidosis since 2007, you’ll note many physiology changes over time and the emergence of a victorious, yet always smiling, Irene.

Thanks for caring,

Dave

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